It looks like this...
For full effect sit in nasty green 'recliner' (it won't), surround yourself with sick people, cram 12 chairs into a room the size of your bathtub, add in overworked nurses, a slow pharmacy and the odd paranoid patient and you're there
A blog that started as an info site to help people keep up with my cancer treatments and has morphed...
Saturday, May 06, 2006
Friday, May 05, 2006
Soft Metal?
Woke up this morning singing "It's the final chemo" to the 'tune' of Europe's "Final Countdown" - the mind is a wonderful thing, I wonder how long my subconscious has been cooking up that little treat?
Hoping to find out what the next steps are today. What I know are scans around two weeks from today, an appointment with a radiation oncologist, radioation therapy almost mandatory - every day for at least a month; and every effort made to have me finished in time to go on vacation July 2nd.
I need to go and grab a coffee and a breakfast cake before my patience with this cat (he likes to sit on the keyboard / between you and the screen whenever possible) wear so thin I do something that hurts my karma.
Ciao
Hoping to find out what the next steps are today. What I know are scans around two weeks from today, an appointment with a radiation oncologist, radioation therapy almost mandatory - every day for at least a month; and every effort made to have me finished in time to go on vacation July 2nd.
I need to go and grab a coffee and a breakfast cake before my patience with this cat (he likes to sit on the keyboard / between you and the screen whenever possible) wear so thin I do something that hurts my karma.
Ciao
Wednesday, May 03, 2006
Delighted Shepherds Ahoy?
The most spectacular sunset tonight... sky a bazing red, fading to vast purple bruises as dusk swallows the city skyline. Just gorgeous.
Heard a great story that when the Nielman ad' (an ad in which the founder of JetBlue - an American airline -talks of his dread of asking for help on other airlines) appears on the screens placed aback the seats on JetBlue (they all get DirectTV) every passenger reaches up and presses the 'flight attendant' button.
That sentence was tortured, the story though is lovely.
Anyway Jude on a delayed train - so pizza time for this boy
Heard a great story that when the Nielman ad' (an ad in which the founder of JetBlue - an American airline -talks of his dread of asking for help on other airlines) appears on the screens placed aback the seats on JetBlue (they all get DirectTV) every passenger reaches up and presses the 'flight attendant' button.
That sentence was tortured, the story though is lovely.
Anyway Jude on a delayed train - so pizza time for this boy
Tuesday, May 02, 2006
Here's the fire
that I was talking about
it's still smoking away - but the smoke is white now, perhaps we have a new Pope
it's still smoking away - but the smoke is white now, perhaps we have a new Pope
What's new
Can see what looks like a HUGE fire raging (huge fires do rage, don't they?) down by the park where I usually walk velcro. Heavy black smoke blocking out the view towards Manhattan
Have a really sore point on my left foot - think that the pedicure may have left my feet so soft that my 5 miles a day with Velcro are leaving me blistered. Damn.
Counting down to Chemo VI - surely a chemo too far. Trying to get a timetable of what happens from there. I've a vacation booked for July 2nd that I'm really hoping to make but that will depend on whether I need radiotherapy, how much I need and of course how soon they can get started. So all up in the air - I'm taking the pessimistic view and preparing myself for missing Anguilla.
Jude at school an extra day this week - but that should be her last schlep up there in a while. I hope so, she could do with a break from the commute and the HOURS it takes to get around up there when you're car-less.
Okay - time to get dressed and get out with the dog. Investigate that fire.
Have a really sore point on my left foot - think that the pedicure may have left my feet so soft that my 5 miles a day with Velcro are leaving me blistered. Damn.
Counting down to Chemo VI - surely a chemo too far. Trying to get a timetable of what happens from there. I've a vacation booked for July 2nd that I'm really hoping to make but that will depend on whether I need radiotherapy, how much I need and of course how soon they can get started. So all up in the air - I'm taking the pessimistic view and preparing myself for missing Anguilla.
Jude at school an extra day this week - but that should be her last schlep up there in a while. I hope so, she could do with a break from the commute and the HOURS it takes to get around up there when you're car-less.
Okay - time to get dressed and get out with the dog. Investigate that fire.
Sunday, April 30, 2006
chemo faced
The face gets rounder and rounder as the steroids really take hold...
Mind you should see my tits... blimey
Oh to have this end and the gym beckon
Mind you should see my tits... blimey
Oh to have this end and the gym beckon
The Weekend
The weekend, the weekend
Been kinda nice here this weekend. The sun is shining, the temperature is hovering at around 20C (perfect Velcro weather) and old friends have been resurfacing.
First up this weekend was Michael – celebrating his 35th birthday in a bar called ‘The Back Room’. It’s literally through an unmarked gate, talk to the large, scary man who leads you down a rat infested alley (we saw two monsters) up another unmarked flight of stairs and into a surprisingly nice bar where they sell their booze in teacups – prohibition speakeasy style. Some nice people there for Michael anyway so good time had be us.
Next up was Sue (who Judith worked with around 10 years ago and whom I’ve not seen since a jaunt to New York to be here for the opening weekend of the rather disappointing Godzilla)… a quick brunch at FADA where the waitress was incredibly rude in that distant, waifish, Williamsburg nonchalant-aggressive way. Still the food was good and because of said waitresses inability to add came to a mere $26 for the four of us (Brunch is $11 so go figure)
From there it was on to the BAM ROSE where we met ‘a recently returned from global travels’ Alex and his ‘in town for the weekend’ girlfriend Christiana – and suffered through ‘Brick’; a dreadful but interesting teen meets noir flick that doesn’t quite pay off ; before finding a tiny bar for drinks that did.
Of course before we got into a taxi for the BAM Rose we had to contend with a volley of gunfire coming from two blocks down - rather pulse quickening as you raced to your taxi and screeched away toward safety.
Today it’s off to the park with the dog before our friend Ali comes over for dinner and tales of her new movie (Jude is going to fill in as a New Yorker in the background)
I’m still heavy legged (could that be a new syndrome? Restless Leg Syndrome – RLS – is all over the TV ads at the moment, this could be the opposite in terms of symptoms but as profitable in terms of suckers willing to cough up cash) but other than that doing well.
Hoping that Friday sees the last of treatment. And that if I do need any radiotherapy it will be short. I booked the vacation in the belief that any radio’ I needed would be done by the end of June. If it’s longer then we may well miss the vacation and lose the money (no insurance for people in the middle of chemo). I’d hate to miss the vacation so everything crossed here.
Anyway LONG entry… time to get dressed and get out into the sunshine.
Been kinda nice here this weekend. The sun is shining, the temperature is hovering at around 20C (perfect Velcro weather) and old friends have been resurfacing.
First up this weekend was Michael – celebrating his 35th birthday in a bar called ‘The Back Room’. It’s literally through an unmarked gate, talk to the large, scary man who leads you down a rat infested alley (we saw two monsters) up another unmarked flight of stairs and into a surprisingly nice bar where they sell their booze in teacups – prohibition speakeasy style. Some nice people there for Michael anyway so good time had be us.
Next up was Sue (who Judith worked with around 10 years ago and whom I’ve not seen since a jaunt to New York to be here for the opening weekend of the rather disappointing Godzilla)… a quick brunch at FADA where the waitress was incredibly rude in that distant, waifish, Williamsburg nonchalant-aggressive way. Still the food was good and because of said waitresses inability to add came to a mere $26 for the four of us (Brunch is $11 so go figure)
From there it was on to the BAM ROSE where we met ‘a recently returned from global travels’ Alex and his ‘in town for the weekend’ girlfriend Christiana – and suffered through ‘Brick’; a dreadful but interesting teen meets noir flick that doesn’t quite pay off ; before finding a tiny bar for drinks that did.
Of course before we got into a taxi for the BAM Rose we had to contend with a volley of gunfire coming from two blocks down - rather pulse quickening as you raced to your taxi and screeched away toward safety.
Today it’s off to the park with the dog before our friend Ali comes over for dinner and tales of her new movie (Jude is going to fill in as a New Yorker in the background)
I’m still heavy legged (could that be a new syndrome? Restless Leg Syndrome – RLS – is all over the TV ads at the moment, this could be the opposite in terms of symptoms but as profitable in terms of suckers willing to cough up cash) but other than that doing well.
Hoping that Friday sees the last of treatment. And that if I do need any radiotherapy it will be short. I booked the vacation in the belief that any radio’ I needed would be done by the end of June. If it’s longer then we may well miss the vacation and lose the money (no insurance for people in the middle of chemo). I’d hate to miss the vacation so everything crossed here.
Anyway LONG entry… time to get dressed and get out into the sunshine.
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